Maria and Juan's daughter, Alma, 2, has been diagnosed with a rare and deadly disease called metachromatic leukodystrophy (MLD).

This genetic disorder is progressive and leads to severe neurological decline, often resulting in death within five years of symptom onset.

Alma currently shows no symptoms other than needing support to walk.

A new stem cell-based gene therapy offers hope, but the family anxiously awaits approval for Alma to receive the treatment before her condition worsens.

"No child should be denied a chance at life," says Juan.